How attitudes research contributes to overoptimistic expectations of

Academic Output
Academic publications/ peer reviewed
2009
Bunnik, E, ACJW Janssens, MH
Schermer
How attitudes research contributes to overoptimistic
expectations of personal genome testing. Am J Bioethics
2009;9:23-25.
2010
Cornel, MC, EM Bunnik, G de Wert
Van hielprik naar persoonlijke DNA code? 1. Tien jaar genetische
screening in Nederland. Een terugblik. Tijdschrift voor
Gezondheidszorg en Ethiek 2010;20(2), 38-43.
2010
Bunnik, EM, G de Wert, MC Cornel
Van hielprik naar persoonlijke DNA code? 2. De uitdagingen van
2010: een inventarisatie van maatschappelijke en ethische
implicaties. Tijdschrift voor Gezondheidszorg en Ethiek
2010;20(2), 44-50.
2010
ACJW Janssens
Why realistic test scenarios in translation genomics research
remain hypothetical. Public Health Genomics 2010;13:166-8; doi:
10.1159/000236062; Published online: September 3, 2009
2011
Bunnik, E.M., M.H.N Schermer,
A.C.J.W. Janssens
“Personal genome testing: Test characteristics to clarify the
discourse on ethical, legal and societal issues.” BMC Medical
Ethics 12:11
2011
Bunnik, E.M.
“Why not order direct-to-consumer genetic testing for your
children?” Genomics, Society and Policy 6(3) 3-5
2011
E Bunnik, M Schermer, ACJW
Janssens
Personal genome testing: test characteristics to clarify de
discourse on ethical, legal and societal issues. BMC Med Ethics
2011;12:11.
2011
ACJW Janssens, AA Wilde, IM van
Langen
The sense and nonsense of direct-to-consumer genetic testing for
cardiovascular disease. Neth Heart J 19: 85-88
2012
Bunnik. E.M., A.C.J.W.
Janssens, M.H.N. Schermer
“A tiered-layered-staged model for informed consent in personal
genome testing." European Journal of Human Genetics doi:
10.1038/ejhg.2012.237. 2012
Bunnik. E.M., A.C.J.W.
Janssens, M.H.N. Schermer
“Informed Consent in Direct-to-Consumer Personal Genome
Testing: The Outline of A Model between Specific and Generic
Consent." Bioethics doi: 10.1111/bioe.12004. 2012
Bunnik. E.M., M.H.N. Schermer,
A.C.J.W. Janssens
“The role of disease characteristics in the ethical debate on
personal genome testing.” BMC Medical Genomics 5:4. Academic publications/ other
2009
Janssens, Cecile
Nature 20 August 2009 Cardiovascular disease gets personal
(paper and interview covered in opinion paper)
2009
Janssens, Cecile
New Scientist 1-7 August 2009 Genes that tell an ever-changing
story (full page article solely about the paper and interview) and
Get the best from your genes (editorial)
2010
Schermer, M.
New genomics en ethiek als een Zwitsers zakmes. Bespreking
van het proefschrift The new genomics - challenges for ethics
van Jeantine Lunshof. TGE Tijdschrift voor Gezondheidszorg en
Ethiek. 2010;20(2), 67-69
Academic lectures/ invited
2009
Janssens, Cecile
Public Health Genetics Foundation, Cambridge UK, 21 January
2009 (Seminar).
2009
Janssens, Cecile
National Office of Public Health Genomics, Centers for Disease
Control and Prevention, Atlanta, USA, 7 February 2009
(Seminar).
2009
Janssens, Cecile
HuGENet Workshop, Cambridge, UK, 17 February 2009.
2009
Janssens, Cecile
Annual meeting European Society of Human Genetics, Vienna,
Austria, 25 May 2009 (Symposium).
2009
Janssens, Cecile
Annual meeting Vereniging Klinische Genetica Nederland,
Utrecht, 18 June 2009.
2012
Bunnik, E.M.
IAB World Congress: one symposium and one invited lecture at
another symposium - two presentations (Rotterdam, June 2012)
Academic lectures/ peer reviewed
2009
Janssens, Cecile
Genes for Health conference, Perth, Australia, 4 May 2009
2009
Bunnik, Eline
1st Dutch Conference for Practical Philosophy, 2-3 October 2009
2011
Janssens, Cecile
“Personal genome testing: Characteristics of the test, the
disease and the context to clarify the discourse on ethical, legal
and societal issues,” European Society for Human Genetics
(Amsterdam, May 2011) (poster presentation)
2011
Janssens, Cecile
3rd Annual Dutch Conference in Practical Philosophy, “The
information problem in personal genome testing: A layeredstaged-tiered model for informed consent” (Amsterdam, October
2011)
2012
Bunnik, E.M.
ESRC Genomics Network conference: Genomics and society:
Facts, fictions and cultures - presentation (London, April 2012)
Academic lectures/ other
2009
Janssens, Cecile
Annual meeting ENGAGE network, Barcelona, Spain, 16 January
2009.
2009
Janssens, Cecile
Annual meeting European Society of Human Genetics, Vienna,
Austria, 24 May 2009 (Debate)
2011
Janssens, Cecile
Centre for Society and Genomics, Berg en Dal, 9 November 2011
2012
Bunnik, E.M.
Presentation annual symposium Nederlandse Vereniging voor Bioethiek (NVBe) (Amsterdam, 7 March 2012)
2012
Bunnik, E.M.
Presenter at the international workshop Genetics goes online:
Practices, policies and possibilities in Maastricht (September
2012)
2012
Bunnik, E.M.
Presenter at the Annual Dutch Conference for Practical
Philosophy (Eindhoven, November 2012)
Societal Output
Societal publications
2009
Janssens, Cecile
Intermediair 13 January 2009: “Genenpaspoort: een kijkje in de
genen”, Interviewed about genetic tests for common diseases
(magazine).
2009
Janssens, Cecile
Monitor (Erasmus MC) January 2009: ‘Genetische zelftests’,
Interviewed about genetic self-tests (hospital magazine).
2011
Bunnik, E.M.
2011
Bunnik, Eline
“Personal genome tests: Ethische en maatschappelijke
implicaties.” NVBe-Nieuwsbrief 18(2): 32.
Column newsletter NBvE
2012
Bunnik, E.M.
“Erfelijk risico goed te verzekeren.” Medisch Contact 67 (48):
2728-2730
Societal lectures
2009
Janssens, Cecile
Science café ‘DNA testing: science or swindle’, DANA Centre,
Science Museum, London, 20 January 2009.
2009
Janssens, Cecile
Tros Radar 2 March 2009 about direct-to-consumer genetic
testing (television interview).
2009
Janssens, Cecile
Science café ‘Do-it-yourself: direct-to-consumer genetic testing’,
Public Library Rotterdam, 28 September 2009.
2010
Janssens, Cecile
Workshop DNA-day Utrecht about direct-to-consumer genetic
testing, 12 March 2010
2011
Bunnik, E.M.
Guest lectures Ethics & Genomics for minor ‘The Future of
Healthcare: Medical Technology’ at Beleid & Management van de
Gezondheidszorg (iBMG), Woudestein (September 2011)
2012
Bunnik, E.M.
Debate ‘Voorbestemd voor goud: De betekenis van genetisch
onderzoek voor sport’ in Lux, Nijmegen (4 June 2012) – followed
by a publication in Lev 8 (p 42-45) by Koen Dortmans